Another story is in the news again

Another story is in the news again brings us the issue of "savior siblings". Creating a savior sibling raises some serious ethical issues.
Consider a situation in which a sick child needs a genetically matched bone marrow (i.e. cord blood stem cell) transplant: is it right to produce embryo siblings, find the genetic match, and implant that embryo into the mother’s womb, in order to provide the sick sibling with a donor?
Best-selling novels, like Jodi Picoult’s My Sister’s Keeper, tell of the strain this real-life drama takes on a family.
Strain between the mother and father (and the husband and wife) as they struggle daily with the real needs of a chronically-ill child who lives daily in the shadow of death.
And then there’s the strain that exists between the siblings, as they come to realize their unique and very unusual relationship. One child lives only because another one needed him to be born. The child feels like a means to someone else’s end, because they are in fact, a means to an end.
This latest real-life story addresses the plight of a little girl, Catherine, who has been diagnosed with Diamond Blackfan Anemia (DBA).
Children with DBA have a genetic abnormality which causes them to not produce red blood cells. And since we can’t live without red blood cells, children with DBA require frequent and regular blood transfusions over their lifespan.
Catherine’s parents had a second child, the natural way, but that child was not a genetic match.
As time went by, they had another child, using pre-natal genetic diagnosis (PGD) for the purpose of tissue typing. They made a savior sibling, Mackenzie.
When Mackenzie was born, her cord blood was collected, but unfortunately, the sample size was too small and didn’t afford enough cells for a stem cell transplant.
So what can be done ethically? Moving forward, we now have the technology and ability to collect and bank cord blood stem cells and begin building a bank of diverse tissue type cord blood samples for treatment uses.
Currently, in the U.S., only about 3% of babies born in the U.S. have their cord blood banked and the majority of this is banking is private – paid for by the parents. But this practice needs to change and more cord blood needs to be collected and stored in public banks.
Thankfully, our federal government passed the Stem Cell Therapeutic and Research Act of 2005 (H.R. 2520) which provides for "the collection and maintenance of human cord blood stem cells for the treatment of patients and research."
And also funding has been provided by the federal government for the National Cord Blood Stem Cell Bank whose purpose is "to provide funds to a network of cord blood banks to: (1) build a racially diverse inventory of the highest quality cord blood units for transplantation (P.L 109-129 establishes a target of 150,000 new units), and (2) make these and other units at participating cord blood banks available to physicians and patients for blood stem cell transplants through the C.W. Bill Young Cell Transplantation Program.
The Program also will make cord blood units available for preclinical and clinical research, focusing on cord blood stem cell biology and the use of cord blood stem cells for human transplantation and cellular therapies."
And we’re doing our part at the CBC by planning a Spring 2009 conference around the theme of "Banking on Life," that will bring together leaders and experts in the field of cord blood stem cell research and regenerative medicine developments, which will be available to help real patients in real need.

Kết quả (Việt) 1:

Một câu chuyện khác là trên báo chí một lần nữa chúng tôi mang đến các vấn đề của "vị cứu tinh anh chị em". Việc tạo ra một vị cứu tinh của anh chị em làm tăng một số vấn đề đạo đức nghiêm trọng.Hãy xem xét một tình huống mà một đứa trẻ bị bệnh cần một cấy ghép tủy xương di truyền phù hợp (tức là dây máu tế bào gốc): là nó ngay để sản xuất phôi anh chị em, tìm thấy các di truyền phù hợp, và cấy ghép đó phôi vào tử cung của mẹ, để cung cấp cho anh chị em ruột bị bệnh với một nhà tài trợ?Tiểu thuyết bán chạy nhất, giống như Jodi Picoult My Sister's Keeper, kể về sự căng thẳng này phim truyền hình thực tế có một gia đình.Căng thẳng giữa mẹ và cha (và các vợ chồng) khi họ đấu tranh hàng ngày với nhu cầu thực tế của một đứa trẻ bị bệnh kinh niên, những người sống hàng ngày trong bóng tối của cái chết.Và sau đó có sự căng thẳng giữa anh chị em, khi họ đến để nhận ra mối quan hệ độc đáo và rất không bình thường. Một trẻ em sống chỉ vì một số khác cần anh ta được sinh ra. Con cảm thấy như một phương tiện để kết thúc của người khác, bởi vì họ là thực tế, một phương tiện để kết thúc.Câu chuyện cuộc sống thực đặt địa chỉ của một cô bé, Catherine, người đã được chẩn đoán với kim cương Blackfan thiếu máu (DBA).Trẻ em với DBA có một di truyền bất thường làm cho chúng không sản xuất tế bào máu đỏ. Và kể từ khi chúng ta không thể sống mà không có các tế bào máu đỏ, trẻ em với DBA cần truyền máu thường xuyên và thường xuyên trong tuổi thọ của họ.Cha mẹ của Catherine đã có đứa con thứ hai, cách tự nhiên, nhưng đứa trẻ đã không một trận đấu di truyền.As time went by, they had another child, using pre-natal genetic diagnosis (PGD) for the purpose of tissue typing. They made a savior sibling, Mackenzie.When Mackenzie was born, her cord blood was collected, but unfortunately, the sample size was too small and didn’t afford enough cells for a stem cell transplant.So what can be done ethically? Moving forward, we now have the technology and ability to collect and bank cord blood stem cells and begin building a bank of diverse tissue type cord blood samples for treatment uses.Currently, in the U.S., only about 3% of babies born in the U.S. have their cord blood banked and the majority of this is banking is private – paid for by the parents. But this practice needs to change and more cord blood needs to be collected and stored in public banks.Thankfully, our federal government passed the Stem Cell Therapeutic and Research Act of 2005 (H.R. 2520) which provides for "the collection and maintenance of human cord blood stem cells for the treatment of patients and research."And also funding has been provided by the federal government for the National Cord Blood Stem Cell Bank whose purpose is "to provide funds to a network of cord blood banks to: (1) build a racially diverse inventory of the highest quality cord blood units for transplantation (P.L 109-129 establishes a target of 150,000 new units), and (2) make these and other units at participating cord blood banks available to physicians and patients for blood stem cell transplants through the C.W. Bill Young Cell Transplantation Program.The Program also will make cord blood units available for preclinical and clinical research, focusing on cord blood stem cell biology and the use of cord blood stem cells for human transplantation and cellular therapies."And we’re doing our part at the CBC by planning a Spring 2009 conference around the theme of "Banking on Life," that will bring together leaders and experts in the field of cord blood stem cell research and regenerative medicine developments, which will be available to help real patients in real need.